Our informative guides have been specifically developed with the help of the CF community, for the CF community. If you'd like to request printed versions of these guides, or to be involved in the development of future guides, please email info@cfnz.org.nz.
This guide is for New Zealanders who have had a friend, whānau or family member’s child diagnosed with cystic fibrosis. It aims to give you a better understanding of what CF is, how it impacts on the child and their family and how you can offer the best support.
It covers the basic information about what CF is, how it's diagnosed, day to day life and practical ways to support friends or family.
You can download the guide or get in touch with us for a printed copy.
Download the Guide to CF for Family, Whānau and Friends
This guide is for parents and caregivers whose child has been diagnosed with cystic fibrosis, to help you and your family understand CF and learn how you can help your child grow and thrive.
Most of the information focuses on supporting you through your child’s first year following diagnosis as a newborn and throughout the booklet, children and their parents share their stories about living with CF and tips for daily life.
This guide has been developed together with A guide to cystic fibrosis for family, whānau and friends.
You can download the guide or get in touch with us to request a printed copy.
Download the Guide for Parents and Caregivers of Children Diagnosed with CFThis guide is for New Zealand primary schools and teachers who have a child with cystic fibrosis (CF) starting at their school. It aims to give you a better understanding of what CF is, how it impacts on the child and their family and what teachers can do to help the child succeed at school.
It has been developed together with ‘Starting School: A guide for parents and caregivers of children with cystic fibrosis'.
Download Starting School: A guide to cystic fibrosis for primary schools and teachers
This guide is for New Zealand parents who have a child with cystic fibrosis (CF) starting primary school. It has been developed together with ‘Starting School: A guide to cystic fibrosis for primary schools and teachers’.
It offers practical advice about topics to discuss with your child’s school and teachers, and offers tips from other parents of school-aged children with CF.
Download Starting School: A guide for parents and caregivers of children with cystic fibrosis
This guide is for New Zealand employers and organisations who have an employee with cystic fibrosis. It provides you with an overview of what CF is, how it impacts on an adult’s life and how you can best accommodate your employee to reach their full potential at work.
Included in the guide are quotes from New Zealand adults with CF that offer an insight into how they’re successfully managing CF alongside their careers.
Download A guide to cystic fibrosis for employers
Cystic Fibrosis New Zealand offers support to everyone with CF and their families through the support of fieldworkers, financial support, information, education and more. Download our mini guide to find out how we can help.
Download mini guide