librarybanner-750x250

Downloads

This is a collection of many useful publications available for download. Our thanks to CF Trust, UK and CF Foundation, USA. Ages & Stages, Exercise, Infection Control, New Diagnosis, Nutrition, Travel, Treatments & CF related disorders, Care in New Zealand, CFNZ Annual Reports, and Other

Ages & Stages

A Guide for Adults with CF
CoverCFANZAdultGuideCFNZ
Discussing topics such as your physical and emotional wellbeing and lifestyle choices, education, travel and employment.

CoverCFANZSchoolSupporting Children with CF
CFNZ
A guide for teachers, school and early childhood centres
 
CoverCFTGrowingUp8-12A Guide for Children with CF, aged 8-12 years
CF Trust, UK
Answers general questions about CF at a level of 8-12 year olds

CoverCFTGrowingUp12-18A Guide for Young People with CF, aged 12-18 years
CF Trust, UK
Discusses CF in relation to teen years, puberty and socialising

CFTrustCover-copySchool and Cystic Fibrosis
CF Trust, UK
A guide for teachers and parents
 
 School factsheet imageFactsheet for Schools

CF Trust UK
A very useful guide for teachers and schools for when a child with cystic fibrosis is enrolled.
CFintheClassroom2013CF in the Classroom
CF Research Inc, USA
A very useful publication for teachers of all ages of children with CF.  Some sections concerned with USA provisions do not apply in NZ

Transition – A Guide for Young People moving from CFTrustCover-copyPaediatric to Adult Care
CF Trust, UK
Answering some of the questions of the teenager preparing to transfer to Adult Clinic

CFTrustCover-copyTransition – A Guide for Parents
CF Trust, UK
Answering some of the questions raised by parents whentheir child is ready to transition to Adult Clinic

CFTrustCover-copyHigher Education
CF Trust, UK
Designed for adults advancing to tertiary education
 
CoverCFTMyMummyhasCFMy Mummy has CF
CF Trust, UK
A children’s book aimed at 3-6 years old, helping young children to understand why Mummy isn’t well
 
Fertility imageFertility Pack

CF Trust UK
A guide for Adults with cystic fibrosis and their partners – an in-depth look at all the issues related to starting a family.
CoverCFFLIfe-AfterDiagnosis
Life After Diagnosis
Parenting Children with Health Issues
A parent’s guide to healthy living with Cystic Fibrosis
 
CoverCFFCaringInfantCaring for your Infant
Parenting Children with Health Issues
A parent’s guide to healthy living with Cystic Fibrosis
 
CoverCFFCaringToddlerCaring for your Toddler and Preschooler
Parenting Children with Health Issues
A parent’s guide to healthy living with Cystic Fibrosis
 
CoverCFFElementarySchoolThe Elementary Years
Parenting Children with Health Issues
A parent’s guide to healthy living with Cystic Fibrosis
 
CoverCFFStaying-ConnectedCoupleStaying Connected as a Couple
Parenting Children with Health Issues
A parent’s guide to healthy living with Cystic Fibrosis
 
CoverMedicinetoKidsPractical Tips for giving Medicine to Kids
Pharmac, Plunket
A pamphlet with a number of very useful tips for getting children to successfully take their medicine
 CoverCFFCFintheWorkplaceCystic Fibrosis in the Workplace
CF Foundation, USA
Poses questions, discusses needs and offers solutions to questions about employment

 Exercise

CoverCFFExerciseDay to Day Exercise and Cystic Fibrosis
CF Foundation, USA
Discusses the role of exercise in the treatment of CF
 
CoverCFTExerciseExercise and Cystic Fibrosis
CF Trust, UK
Answering questions about exercise and Cystic Fibrosis

Infection Control

CoverCFANZInfectionControlCFANZ Infection Control Policy
CFNZ
Excerpt from the CFNZ Policy Document
 
CoverCFANZInfectionControlInfection Control & Hygiene Guide
CFNZ
General hygiene guidelines for people with CF
 
CoverCFFKnowaboutGermsWhat You Should Know About Germs
CF Foundation, USA
Information about ‘germs’ particularly those that have impact on people with CF
 
CoverCFFStopSpreadGermsStopping the Spread of Germs
CF Foundation, USA
Information on infection control procedures for people with CF and their families

New Diagnosis

CFANZGeneticsLayGuideGenetics of Cystic Fibrosis: A Layperson’s Guide
CFANZ
An explanation of genetic inheritance of the CF gene

CFNZ Information Guide coverCystic Fibrosis Information Guide
CFNZ
Information about CF and Cystic Fibrosis New Zealand
 
CoverCFANZLateDiagnosisCystic Fibrosis Late Diagnosis Guide
CFNZ
Information for those diagnosed with CF in adolescence or adulthood
 
coverCFANZFriendsFamilySupporting Family or Friends who Receive a Diagnosis of Cystic Fibrosis
CFNZ
Information on ways in which you can offer support to those who have received a new diagnosis of CF in the family
 
CFTrustCover-copyFinding Out
CF Trust, UK
A guide for parents of newly diagnosed children with Cystic Fibrosis
 
CFTrustCover-copyThe Sweat Test
CF Trust, UK
What is it and how is it performed?
 
CoverCFTGeneticsGenetics
CF Trust, UK
Genetics, carrier testing, tests during pregnancy and for newborn babies

Nutrition

CoverCFTNutritionAdultsA Guide to giving Pancreatic Enzymes
Auckland DHB
A guide to giving pancreatic enzyme supplements to infants with Cystic Fibrosis

CFTrustCover-copyNutrition – Infants with CF
CF Trust, UK
A guide for feeding infants who have CF
 
CFTrustCover-copyEating Well with Cystic Fibrosis
CF Trust, UK
A guide for children and parents

CoverCFTNutritionAdultsEating Well with CF – A Guide for Adults
CF Trust, UK
 
CoverCFFNutritionEncourageHow to Encourage Healthy Eating
CF Foundation, USA
Providing pointers to relieve anxiety abuot eating behaviours
CoverCFFNutritionEnzymesPancreatic Enzyme Replacement
CF Foundation, USA
 
CoverCFFNutritionChangesNutrition Changes through Life
CF Foundation, USA
A guide to how nutritional needs change throughout the stages of your life

CoverCFFNutritionGrabnGo
Grab’n’Go
CF Foundation, USA
Meal and snack ideas for people with CF on the run
 
CoverCFFNutritionColourColour Your Calories
CF Foundation, USA
Adding antioxidants to you high-calorie CF diet

Travel

CoverCFANZTravelGuideTravel Guide for People with Cystic Fibrosis
CFNZ
A guide to assist you, your family and travel advisors.

CFTrustCover-copyMeliodosis and Travel to Tropical Countries
CF Trust, UK
Information about meliodosis, an infection risk to people with CF travelling to certain tropical countries. 

Treatment & CF-Related Disorders
CFTrustCover-copyPhysiotherapy – For babies & Toddlers with CF

CF Trust, UK
Information about, why, when and how to do physiotherapy on babies and toddlers
CFTrustCover-copyPhysiotherapy – Airway Clearance Techniques
CF Trust, UK
Discussion about various airway clearance techniques

CFTrustCover-copyPhysiotherapy – Urinary Incontinence
CF Trust, UK
What is it and what can you do to improve it?

CFTrustCover-copyHome Intravenous Therapy
CF Trust, UK
Advice for patients, parents and carers

CFTrustCover-copyThe Use of Ports in Cystic Fibrosis (Totally Implantable Venous Access Devices)
CF Trust, UK
Information for patients, parents and carers

CFTrustCover-copyNebuliser Therapy
CF Trust, UK
Information about the types of nebulisers, maintenance and the types of medications used

CFTrustCover-copySteroid Treatment in Cystic Fibrosis
CF Trust, UK
Discussion about the use of steroids in the treatment of CF, and methods of delivery

CFTrustCover-copyCystic Fibrosis and Bone Health
CF Trust, UK
Describes how bone health is affected by CF and the implications

CFTrustCover-copyCystic Fibrosis Related Diabetes
CF Trust, UK
Provides answers to frequently asked questions about CF-related diabetes

CFTrustCover-copyTransplantation
 
CF Trust, UK
Information about lung transplantation for patients with Cystic Fibrosis

Care in New Zealand

CoverCFANZ-FieldworkerServFieldworker Services
 
 
CoverCFANZStdsofCareNZStandards of Care for Cystic Fibrosis in New Zealand
CFANZ: Medical Advisory Committee
  
 CoverCFANZPortCFPort CFNZ – Cystic Fibrosis Data Registry
 What is the registry, and what purpose does it serve? 
 PORTCFNZ2011Port CFNZ 2011 National Data Registry Report
 
Cover2012PORTCFNZPort CFNZ 2012 National Data Registry Report
 

2013 Port CF cover

 Port CFNZ 2013 National Data Registry Report
 
PORT CF cover 2014Port CFNZ 2014 National Data Registry Report

CFANZ Annual Reports

Annual Report cover

Cystic Fibrosis Association of New Zealand

Annual Report 2015


CFNZ Annual Report cover 2014

Cystic Fibrosis Association of New Zealand

Annual Report 2014

Cover2013CFANZ-Annual-Report-230x300Cystic Fibrosis Association of New Zealand
Annual Report 2013
CoverCFANZAnnRprt2012Cystic Fibrosis Association of New Zealand
Annual Report 2012
CoverCFANZAnnRpt2011Cystic Fibrosis Association of New Zealand
Annual Report 2011
CoverCFANZAnnReport2010Cystic Fibrosis Association of New Zealand
Annual Report 2010
 
Other

CoverCFANZVolunteersInformation for Volunteers

CFNZ
Information about who we are, what we do and how you can help
 CoverCFANZLeavingLegacyLeaving a Legacy
CFNZ
Information about leaving a lasting contribution in your will