Personal Stories

Our Personal Stories provide a first-hand perspective on what living with the burden of cystic fibrosis treatment is really like – we hope these stories provide inspiration to other people with CF and their loved ones – these Kiwis have all faced trials but they have still found the strength to overcome them.

Cystic Sisters Kristie Purton and Nikki Reynolds-Wilson

Sisters Kristie Purton and Nikki Reynolds-Wilson are true CF heroes – they are well known in the CF community for their tireless work during Cystic Fibrosis Awareness Week when for two years they undertook 65 days of good deeds in the lead up to the Week in August. This led to lots of other groups and organisations also wanting to perform good deeds for others. They also both have amazing stories to tell about living life with CF.

 Alex McKay

Alex McKay gave a moving presentation at the 2016 CFNZ National Conference where he described the impact CF has had on his life, some tips for managing the condition, and his personal life philosophy:






Mark Ashford Video

Interviews with three tertiary graduates feature in this Mark Ashford Video produced by Kieran Wright to mark the legacy of Mark Ashford who passed away with CF in 1996. Mark’s legacy lived on with the Mark Ashford Scholarship, sponsored by his employers Fletcher Challenge and now Pink Batts. The video celebrates the impressive achievements in tertiary education of people with CF in New Zealand.


Will Polson Story

Will Polson had a new lease of life following his lung transplant in 2007. He spoke at the 2015 National Conference about the positive impact this has had on his life and family:



Vaughan Somerville

Vaughan provided an indepth look at growing up with CF when he presented via video link at the 2015 CFNZ National Conference: